The Seattle Quality of Life Group at the University of Washington is studying the quality of life of children and youth who are deaf or hard of hearing D/HH). Based on interviews with youth (ages 11-18 year) who are D/HH and parents of children (ages 5-10 years), we have created new questionnaires to measures quality of life specifically for children (parent report) and youth (self report) who are D/HH. We need you to help in the development process by completing the questionnaire. We hope that this new measure will help researchers in a variety of fields (health, audiology, education, social work, and public policy) and ultimately help children and youth who are D/HH. In order to create this new questionnaire with standardization and normative data on deaf and hard of hearing children and youth, we need your help!
So far, over 300 youth and parents have taken part in the study, but we need YOUR help! We especially need participants who have mild to moderate hearing loss. As a thank you for taking part in the study we will give you $25 for your completed questionnaire.
It is easy to participate in the study. You can either call one of our study coordinators at 1-800-283-5827 who will provide you with additional information and ask you a few questions to determine your eligibility OR you can go to our website and complete our on screening form:https://depts.washington.edu/projhql/FAQ/index.htm Look in the left yellow column for the group you are in (parent or youth) and click on parent or youth. When you get to the login screen use the custom Id “platypus2009” to gain access to the form. If you have more than one child who is D/HH, you must fill out separate form for each child. This takes less than 5 minutes to complete.
If your child is eligible, a research staff will mail you a packet of forms to sign and return. After we get the forms, a research staff will give you a password to begin filling out the survey form online. For parents of children ages 5 to 10, the survey will take less than 30 minutes. For youths ages 11 to 18, it will take about 45 minutes. If you or the youth prefer ASL administration, we can mail you a DVD. The English print is available online and in paper form if you prefer this.
If you have questions or concerns, please feel free to contact me at 866-758-9568 (VP) or firstname.lastname@example.org.
Poorna Kushalnagar, PhD
VP or Telephone No: 866-758-9568